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More than £1,000 is raised for tot with rare disorder after family friend shaves his head!

More than £1,000 is raised for tot with rare disorder after family friend shaves his head!

by Danielle Thompson (May 2020)

MORE than £1,000 has been raised for Southport tot Isla Rose during the lockdown - after a family friend shaved his head for research!

Isla Rose Settle, who turned one on September 30, is one of only 40 children in England and 500 children worldwide with the rare genetic condition Non-Ketotic Hyperglycinemia (NKH). It is caused by an excess of glycine on the brain which affects development and symptoms include frequent seizures, immobility, and ‘global developmental delay.’

The Champion revealed in 2019 that the families of all those affected by the condition have launched a joint appeal to raise £3million for ground-breaking treatment in the USA to begin, with her parents Sarah Steel, 33, and Michael Settle, 32, from Churchtown, concentrating on Isla Rose’s efforts.

Sarah Steel told the Champion: “I have a warm, uplifting story! We’ve had to cancel lots of events due to the coronavirus, but my lovely friend Ian Isherwood from Birkdale has kindly raised £1,000 and counting for the Isla Rose Foundation by shaving his head for research!

“A company in Leigh called Corptel have donated £500 of that for Isla – I am absolutely over the moon as events have come to a halt!”

To add to their donations, go to their Just Giving page at https://is.gd/vZPnKB or for more information go to https://islarosefoundation.com/

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